Jan 12-13, 2014

January 13, 2014

It's official.  Rokus comes home tomorrow.  This is great news but also a bit stressful.  There won't be nurses around and we will have to manage all the medical supplies.  Here we go.

January 12, 2014

It's been over 3 months, as of today, since Rokus got admitted into Children's Hospital Oakland.  It seems like such a short time when I write it, but it has been brutal living it.  I talked with the doctors about transitioning us to caring for Rokus at home.  We are close to ready.  I have been trying to get enough supplies and nursing preparation as possible.  So far so good.

January 11, 2014

Rokus has been taking his feeds well but if we agitate him then he ends up vomiting a lot of formula.  If we try to force him to eat or taste a particular food he gets very upset and then begins vomiting.  So, lesson learned...don't agitate Rokus and keep him calm.

I talked to the medical staff about having concerns about how to care for his nutritional and gastro-intestinal needs at home.  It seems at this point that is our main focus and concern.  So, they showed me how the g-tube functions and how to care for it.  I also administered Rokie's meds via the g-tube.